Positive Policies not Pathologising Patronisation

Neurodiversity Manifesto: Labour Party Launch

A response to the March 2019 Thinking Autism article: ‘What is wrong with The Labour Party’s “Autism Neurodiversity Manifesto” and autism identity politics?’ https://thinkingautism.org.uk/labour-party-neurodiversity-manifesto-identity-politics/

By
Janine Booth on behalf of the Neurodivergent Labour Manifesto group

One of
the most striking things about the Thinking Autism article is something that it
does not include. It contains no disagreement with any of our Manifesto’s
policies. None at all. Instead, it attacks our principles and picks at our
wording. We are more than happy to defend our principles, and do so below, but
let us first remind readers of our Manifesto’s policies.

Diagnosis/identification and support

Diagnostic/identification service available to all, without delays, which recognises neurodivergent conditions in girls and women as well as in boys and men. Assessment as to whether the individual has other, related conditions.

Adequate support following diagnosis, for example coaching
from other neurodivergent people.

Independent living, services…

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Why you need to stop using the puzzle piece to represent autistic people

Autistic Alex

I hate the puzzle piece. I hate it with every fiber of my being. Therefore, since in a lot of places it’s national autism awareness month, I’m going to write about why you shouldn’t use the puzzle piece.

First; a little history on the puzzle piece. It was originally a national autistic society symbol. It’s history is documented here , towards the end of the piece, but the important bits regarding the puzzle piece are quoted lower down here. (trigger warning for ableism on that piece).

That first logo was this.

[Image description] A disembodied weeping head on a puzzle piece. [Image description] A disembodied weeping head on a puzzle piece. “’The Committee decided that the symbol of the Society should be the puzzle as this did not look like any other commercial or charitable one as far as they could discover’. It first appeared on our stationary and then on our newsletter in April 1963. Our Society was the…

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LPAND Manifesto Motion passed

Anyone interested in putting the Motion forward to their own Labour Party branch or CLP, please look for the details on the http://www.neurodiversitymanifesto.com website. Congratulations are definitely in order – now for all the other branches and clps… 🙂

Neurodiversity Manifesto: Labour Party Launch

Message from one of our
Neurodivergent Labour Organising Group members, Lucy Stokes:

“Excellent news comrades.

The Autism/Neurodiversity
Manifesto motion for St Thomas’s branch in Dudley North constituency has been
unanimously passed.

Here is the motion:

Labour Party Autism /
Neurodiversity Manifesto

St Thomas’s Branch Labour Party welcomes the
drafting of a specific Labour Manifesto on Autism/Neurodiversity.

We note that this process has been overseen by
a team of neurodivergent Labour Party members and supporters convened by John
McDonnell MP and has had input from trade unions and campaign groups.

We note that autistic, dyslexic, and dyspraxic
people, and people with attention deficit disorders, Tourette’s,
obsessive-compulsive disorders and other neurodivergent conditions experience a
great deal of hostility, distress and disadvantage in our society, and that
strong Labour policies on this issue can make a real difference to people’s
lives.

We support the draft Manifesto’s core
principles of the social model of…

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Autistic Children and Young People: How to Help Us

Understanding Autistics

I have spent the past 12 months gathering the views of autistic children and young people: what is important to them, what their biggest challenges are and what they would like to change in their lives.

Before reading this, please watch this music video I have created, sharing the voice of some of these children and young people.

I have created surveys and questionnaire which to date over 900 autistic children have responded to, I have interviewed and spoken directly to around 80 children and have also consulted with hundreds of autistic adults on what they wish life was like for them when they were children.

There are four key themes that were identified during this process, and I would like to share these 4 themes with you.

Please be mindful this is just an overview of the priorities of autistic children and young people. More in-depth information, support and…

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The Fallacy of Functioning Labels

Speaking of Autism...

Spend enough time in the autism community, and you’ll notice the popularity of the “functioning label.” “I’m a high functioning autistic,” people will proclaim. “My brother has low functioning autism,” people will say. You could also put talks of severity in this category with “My son is only mildly autistic” or when people ask “how do I interact with someone who has severe autism?” You will see this relatively frequently.

However, these labels are not as straightforward as they are sometimes made out to be. These labels are entirely arbitrary and are neither accurate nor useful for describing autistic people, as I will discuss.

“But, Quincy!” I can hear you yelling through your computer, “That can’t be! Obviously there are distinct differences between high functioning and low functioning autism!”

People will observe and see an autistic person who is highly intelligent, seemingly articulate, attends regular school classes, and is even…

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‘Everything is AUsome’: My First Autism Conference

Aspie & Me: A Self-Portrait of Asperger's

Yesterday, I attended my first ever autism conference and it was easily one of the most heartening, uplifting experiences of my life! Being the inaugural year of the ‘AUsome Conference’ the wonderful Evaleen Whelton has worked tirelessly to ensure this landmark occasion will be remembered for years to come, and I congratulate her most heartily on the incredible success that was the finished product. From the delightfully rich array of guest speakers to the incorruptible sense of optimism, pride and solidarity that impregnated the air from start to finish, I wish I could bottle the entire thing and relive it over and over. I cried a little, laughed a lot and loved it all.

Here, all self-consciousness went out the window.

I could take off my shoes and walk around in my tights if I felt like it without anyone so much as batting an eyelid – in fact, I…

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The Launch of Neurodivergent Labour: Tickets are Sold Out!

Neurodiversity Manifesto: Labour Party Launch

We (i.e. a handful of Steering Group members who are organising the launch of the new organisation ‘ Neurodivergent Labour‘) are delighted to let you know that the launch of Neurodivergent Labour on 9th February is sold out!

This is an exciting development for all Labour Party members who are neurodivergent.

Following on from the successful development of a Labour Party Autism / Neurodiversity Manifesto, and in response to calls from many Labour members, we are setting up a new society within the Labour Party; Neurodivergent Labour.

All Labour Party members who are Neurodivergent are welcome to attend the launch meeting of Neurodivergent Labour. This new organisation aims to represent Autistic, Dyslexic, Dyspraxic and Dyscalculic people, and people with ADD (with or without Hyperactivity), Tourette’s or other developmental atypical neurological conditions.

We aim for this society to be democratically run by neurodivergent people for neurodivergent people, to make…

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Launching Neurodivergent Labour

We are delighted to invite you to the launch of Neurodivergent Labour on 9th February, for all Labour Party members who are neurodivergent.

Following on from the successful development of a Labour Party Autism / Neurodiversity Manifesto, and in response to calls from many Labour members, we are setting up a new society within the Labour Party; Neurodivergent Labour.

All Labour Party members who are Neurodivergent are welcome to attend the launch meeting of Neurodivergent Labour. This new organisation aims to represent Autistic, Dyslexic, Dyspraxic and Dyscalculic people, and people with ADD (with or without Hyperactivity), Tourette’s or other developmental atypical neurological conditions.

We aim for this society to be democratically run by neurodivergent people for neurodivergent people, to make our voices heard in the Labour Party and wider society.

During this meeting we will agree on the main principles and structure of this organisation, in preparation for a founding AGM later in 2019.

Booking: You will need to book via Eventbrite to attend this event. Entry is by ticket only. Please use this link https://www.eventbrite.co.uk/edit?eid=54044961936

When booking, please let us know of any accessibility needs you have.

The Diskus conference room is in the basement of the Unite building, with access via a lift and accessible lavatories on ground floor.

The Labour Party Autism / Neurodiversity Manifesto link:

https://neurodiversitymanifesto.files.wordpress.com/2018/12/LPAND-Draft-Manifesto-V3-June-2018.docx

 

 

10 Rhetorics of Applied Behaviour Analysis (ABA)

ABA Controversy Autism Discussion

ABA Rhetoric #1: ABA interventions are the most evidence-based effective autism intervention

Actually evidence for ABA programmes is overwhelmingly poor and considered low/ very low and this was confirmed once again by a May 2018 Cochrane review.

You can also follow #ABAResearch on Twitter for other ABA related research we have been sharing.

Also, at the time of writing this, Ambitious about Autism, who run two ABA schools and an ABA college around London states on its website that “there is very little research about how ABA is applied in ABA schools” and they don’t know why or when ABA will help or harm.

This poor quality evidence is despite over 500 published studies and three decades of ABA research. No NHS guidance recommends ABA programmes, yet ABAers think having low standards for autistic people is OK.  How many more decades does the global $8 billion ABA industry deserve?

No…

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Emma Dalmayne | Quote of the Month | Unite Magazine

Well done, Emma!

International Badass Activists

AIM’s Emma Dalmayne has a piece featured in this month’s issue of Unite Magazine, in which she speaks out against J.B.Handley and his new book ‘How To End The Autism Epidemic’.

Our children deserve to grow up and live in a world that is accepting and inclusive, not one where they as autistic people are labelled vaccine damaged, injured, an epidemic, or a holocaust.

Emma Dalmayne

Link to page:
https://www.facebook.com/UNITEMag/

Edition link:
https://twitter.com/UniteMag/status/1060180325370945538?s=19

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