Yes, yes, yes! This is what we have been saying – and tried to embody within the Autism / Neurodiversity Manifesto: http://www.neurodiversitymanifesto.com & facebook.com/LPANDmanifesto/ š
Monthly Archives: May 2017
“Call the doctor!” – Speaking to clinicians about Autism and mental illness
I am at Melbourne airport, waiting for my delayed flight to leave for home. I just had to get a replacement boarding pass and handed it in to get a new one for the cancelled flight. The flight attendant said āDoctor Purkis?ā and I replied āYesā quite confidently ā this fib was easier than explaining why I was incorrectly titled as a doctor.
The reasonĀ for my undeserved Doctor-ing was that last night I spoke at a conference for paediatricians ad psychiatrists who work with people with ADHD and Autism. The events company organising the conference must have just thought all the speakers were doctors, hence the mix-up.
The presentation was one of the best talks I think I have done ā not so much due to my delivery or even the content of my slides. The beauty of my talk yesterday was the audience of around 150 psychiatrists andā¦
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Self-Care is Resistance!!
I have been thinking about the incredible endurance and perseverance of people who are fighting for human rights, for themselves and for othersā¦
Activism is gruelling, slogging, hard workā¦ and it is seemingly unending. It can be hard to step back and take a break and find space to be renewed (even a little) when you are committed to making change and there is so far to goā¦ so much work to be done.
I get that it is hard to not be busy, because, I know for me at least, it feels like taking action is empowering. And, collectively, I believe we are going to make things better for people. Things will change.
I think too, it can be difficult to take a break or step back because that can feel like a lack of committment ā and the dedicated activists I know are unendingly generous with whatā¦
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Autism / Neurodiversity Manifesto Steering Group Leaflet: Reasons to Vote!
Please see our new leaflet, written due to the sudden call for a General Election on 8th June.Ā We believe it is important for everyone to vote for the future…
Please see theĀ LP Autism / Neurodiversity Manifesto blog at: http://www.neurodiversitymanifesto.com
Please share this leaflet as widely as possible –Ā if you agree with it.Ā Thank you, annieĀ š
Tolerance vs Acceptance
Accept : embrace
Tolerance vs Acceptance
definitions of Tolerance at left:
- the capacity to endure pain or hardship
- indulgence for practices different from or conflicting with oneās own
- the allowable deviation from a standard
- the capacity of a body to endure or become less responsive to a substance or insult, especially with repeated use or exposure
- relative capacity of an organism to grow or thrive when subjected to an unfavorable environmental factor
definitions of Acceptance at right:
- the quality of being able to take or hold
- the act of giving admittance or approval
- the act of regarding something as proper, normal, or inevitable
- the act of recognizing as true
- the act of making a favorable response to
- the act of assuming an obligation to
- the state of being received willingly
Autism Acceptance
because tolerance is not enough
‘Don’t assume I can’t do it!’ – Neurodiversity and competence
I was at an event earlier in the year for which i was the keynote speaker. The MC introduced with the following: āAnd now Jeanette is going to give her little talkā¦ā I was affronted. That little word ālittleā carried with it paternalism and a good whiff of tokenism. I got the feeling the organisation wanted an Autistic speaker just so they could say they did. Maybe my diagnosis was more of a draw card than my actual presentation. I was so annoyed that I was determined to give as good a talk as I could. Needless to say I absolutely knocked it out of the park and the conference delegates all told me how wonderful my talk was. (āBring it on ableist MC boy!ā I thought to myself).
Sadly this experience is all too common. In my situation it didnāt have a lot of implications for me other thanā¦
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Iām dismissed! Where invalidation comes from and what to do about it
Standing up for ourselves – and others…
When I was about eleven I apprehensively went up to tell the teacher i was being bullied by some of the boys in my class: āMiss, the boys are chasing me and calling me names.ā Miss thought for a fraction of a second and said āJust ignore it, And stay away from themā. āBut they can find me!ā Miss went on to apparently more important things and I was all alone.
When I was 22, a skinny kid in hippie clothes with a faded streak of purple in my messy hair, I was in England with my parents. I was a visual artist at the time, and made the most incredible, soulful drawings. I went to a shop in the town where we were staying to buy some pastels and a can of spray fixative. I went up to pay for these things and the woman behind the counter lookedā¦
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The problem with the Mask Analogy for Women with Autism
A mask is a false external covering.
It can be worn to conceal a personās true identity for better or for worse.
The idea that Women with High Functioning Autism are not being adequately diagnosed, simply because they wear masks, also carries within it the ideation that all women with Autism intentionally try to conceal their true selves in order to āpass as normalā.
This in turn implies that all women with Autism willingly engage in the act of perpetrating some form of female deception which, in turn, somehow creates the inability of professionals to recognize them for who they are.
The idea that women are fiendish creatures, capable of deceiving men, is not a new one.
In fact, that particular idea is as old as humanity and has been used successfully over the course of history to deny women the same basic human rights and considerations as men.
Whichā¦
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Strategies for Neurotypical People to Develop Empathy for Autistic People
Historically, there has been much debate about the extent to which autistic individuals experience empathy. I am using the phrase āautistic individualsā rather than āindividuals with autism,ā per the recommendation from the Autism Self-Advocacy Network. Recent studies indicate that while autistics may experience and demonstrate empathy in different ways from neurotypicals, they do indeed experience it, sometimes to intense degrees. The debate is well summarized here.
Empathy image credit here
Throughout this discussion, I have observed a curious and glaring omission: what about how and whether neurotypicals empathize with autistics? One of the basic tenets of social skills is reciprocity, an attunement to the back and forth nature of social interactions. If we are examining how well autistics display empathy towards others (the majority of whom are neurotypical), it is only fair to ask how and whether neurotypicals are extending the same courtesy back
In myā¦
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