Monthly Archives: June 2018

Respecting difference: Autistic people aren’t ‘speaking neurotypical’

YennPurkis

In the course of a presentation today I did something I have never done before – I spoke to a former ABA therapist. MY heart sank as she eagerly said ‘What do you think about ABA?’ For anyone who hasn’t come across it before, ABA or Applied Behaviour Analysis is an intervention used on autistic kids. It is essentially premised on making children ‘less autistic’ and uses a system of rewards and in many cases punishments to promote compliance. Almost every autistic advocate you will meet will say how damaging ABA is, doing things like forcing kids to make eye contact and coming from the premise that autistic reality is ‘wrong’ and in need of fixing. There is growing evidence as autistics who were subjected to ABA as kids grow older, that it causes trauma. ABA pretty much stands against everything I believe in and strive for. So being confronted…

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Our Recent Study on the Overlap between Autism and Ehlers-Danlos Syndrome/Hypermobility Spectrum Disorders

Science Over a Cuppa

Although much of my research efforts to date have focused on the genetics of autism, over the last year or so I’ve turned a significant part of my attention to a particular group of connective tissue disorders (CTD) and their overlap with the autism spectrum. The CTDs I’m referring to are known as Ehlers-Danlos Syndrome (EDS) and the closely-related Hypermobility Spectrum Disorders (HSD).

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To be frank, much of my interest in this area has stemmed from my own experience and recent diagnosis with an HSD, which has put me in contact with a number of fantastic online support communities on Facebook for EDS/HSD and its comorbid issues like postural orthostatic tachycardia syndrome (POTS) and mast cell activation syndrome (MCAS). In coming to know these communities and learning from their vast stores of knowledge, I also began to notice that there was a lot of talk about autism on…

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